Shine on, Joe

2015-04-24 05.41.46
My writing companion this morning

I’ve been holding a silent vigil here for Joe Neyer since I asked for your help on 4/16.

Last year, Brittany Maynard garnered national attention for the right to die with dignity debate. Joe, living with the same diagnosis as Maynard, wrote her a letter that also made its rounds, although not rising to the level of the cover of People Magazine.

His letter, I think , was not meant to be a counterpoint to hers, but an alternative point of view to stand side by side with hers.  From the letter:

It was great to see this conversation brought into the open by Brittany and there is much more to explore, it seems. Those with glio who watched her story were given death with dignity as an option. That is one story to be told here.

I would like to add to it about living with quality while facing a terminal condition. It seems to me those same people afflicted with GBM who saw her story may benefit to know there are other options that they do not know. Not only on how to live, but potentially how to live well — if we are open to possibility

The right to die with dignity involves the right to live with quality.  We are beginning to find out just how much we can do in this regard when it concerns a terminal diagnosis such as GBM.

Please read the whole letter here.

You probably know why I broke my silence at this early hour. After living in what appeared to be his “last 48 hours” for almost two weeks, Joe died yesterday. His legacy includes an upcoming book, a strong and lovely wife, three incredible kids, and thousands of us whose lives are better for having crossed paths with him.

“The right to die with dignity involves the right to live with quality.”